Return Journey Home

We are finally home!

Jeramy is happy to be back as he has spent the last few days feeling very sore and painful from the excessive amounts of bone marrow that have been proliferating in his system. Our trip home required wheelchair assistance as Jeramy was very limited on the distances he could walk. We had planned to go out to dinner last night to celebrate, but he was in so much discomfort we took the advice of the hotel concierge and ordered in from a local Chinese restaurant. We were very pleased with the food and the suggestion and spent the evening laid up in bed watching movies.

We found out that the bone marrow donation had been a total success and Jeramy had actually exceeded the required amount of stem cells needed for the transplant (this is good news for the patient and for us).

This morning I packed up most of our stuff and we headed out. The flight was very uncomfortable for Jeramy with turbulence and bumps, but fortunately we were bumped to first class and so it made the trip a little more easy to tolerate.

I also received news back yesterday that I have been diagnosed with focal epilepsy and that I will likely require additional medication changes in the future. This was actually relieving news for me as I have been struggling with why I can't progress my activity tolerance and now I finally have some answers. I brought this information to Dr. Baronia's attention and he assured me that EEG changes are common and it takes time for those to adjust. I trust him completely and he still feels confident that things will improve later so that made me feel much better. In the meantime I will be able to continue with yoga activities, but I will have to slow my pace significantly and listen to what my body is telling me as my symptoms seem to correlate specifically with increased physical stress. I think the neurologist feels that I am still experiencing seizure activity, but that my large seizure activity is better controlled now. I am coming to terms with the fact that it may be at least a year if not longer before I am able to return to my favorite activity of running.

All in all, I feel that this past 4 days has been very successful and very eventful. I am looking forward to what the future holds and I will be greeting each day with a new respect for life.