Tuesday, May 19, 2015

A new journey

Good Morning (technically, good afternoon). I had a little freedom in my schedule and decided to update my blog as I am in need of a place to release some frustrations and share some successes. I expect this will be a shorter post as I am limited on my time today.

I followed up with my neurologist this morning and needless to say, I was pretty dissatisfied with my appointment (as usual), with the exception of the final decision of the attending physician. I met with my usual resident MD and we began our 3 month ritual of describing everything I was experiencing and dancing around the issues 4 or 5 times before he finally goes to communicate this information with the attending, and the process starts over again. I do not ever feel as though these doctor's listen to what I have to say, and while I understand that I am not an easy patient to work with; I know what I am experiencing and when they brush off my complaints as nothing it makes me very upset. Today the Attending Physician presented himself with a particular egotistical air about him and some of his comments came across as uncouth and sexist. I do not take well to men who question my intelligence. Women in this country have to work their asses off to gain respect in this field and I'll be damned if a male Physician is going to insinuate that he holds a superiority to me in intelligence and education. Not trying to brag, but if we want to play the who's smarter game I'd be happy to throw out that I made a 95 and 98 respectively in neuroscience I & II; so I have an idea of how things work in the brain and central nervous system. I come from a very well educated family of engineers, physicians, journalists, and college professors so I think there is something to be said there. Anyway, I digress; basically I wanted to punch them all in the face when I left. The only aspect that I was in agreement with was to move forward with another EEG next week to determine the course of medication changes for me in the future. I am hoping the EEG shows that activity has been reduced in terms of focal seizures, and we can begin adjusting medications accordingly.

I continue to work Full Time and feel better each week, so I am happy to continue the upward progress. I walked 1.33 miles outside and I realized it will be quite some time before I am able to tolerate outdoor activity without getting irritated or over heated. In the meantime, I will continue with my yoga regimen and I'm looking to up my practice for strengthening and balance improvement. The yoga really helps, especially on the days that I desperately miss running. I'm so proud of my friends who are accomplishing so much on their running journey, but I desperately want to be next to them running as well. I have to remind myself that it will take time and that I will eventually get there; maybe not this year or next; but I will eventually return to the sport I love.

Jeramy has been selected as a blood donor candidate for Bone Marrow transplantation and so we will be traveling to Dallas June 5th-9th to participate in the Be The Match Program. All our expenses are paid through the company and we will even have a driver to take us where we need to go. I look forward to this experience and will likely blog about it during our time there.

This weekend we travel to Austin for Heather's wedding. Jeramy will be serving as an usher for the event and so we will likely be very busy the entire time we are there. It will be good to see family that we have not seen in some time and I look forward to spending some quality time with my parents and sister's and Jeramy's family.


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